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Resources by Disability
Cystic Fibrosis (CF)
Definition: Cystic Fibrosis (CF) is a hereditary disorder that causes severe lung damage and nutritional deficiencies. Approximately 12 million Americans are carriers of the recessive CF gene.
Symptoms: Common symptoms of CF include frequent lung and sinus infections, delayed growth, digestive problems, blockage in the bowels, and abnormally salty sweat.
Cause: CF is caused by a buildup of thick, sticky secretions in the body's reproductive, respiratory, and digestive tracts. Because it is a hereditary disorder, people with a family history are at greatest risk of developing CF. It is also more common among Caucasians, particularly of Northern or Central European decent.
Diagnosis: To diagnose CF, physicians perform a standard sweat test, which measures the amount of sodium chloride (salt) in a person’s sweat. Genetic screening is also available for pregnant women. Most children are diagnosed with CF by the time they are 2 years old.
Treatment: There are medications that can relieve the symptoms of CF and treat related complications.
Myth: People often associate CF with lung transplants. In truth, many people with CF live past the age of 30 and still have their original lungs. With proper care, lung transplants may be entirely avoidable.
Notable People with CF:
- Lisa Bentley, a Canadian triathlon athlete.
Support Groups:
Cystic Fibrosis Foundation
Delaware Valley Chapter
2004 Sproul Road Suite 208
Broomall PA 19008
Tel: (610) 325-6001
Fax: (610) 325-6588
Email: del-valley@cff.org
Website: http://www.cff.org/chapters/delawarevalley/
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